Well as most you may know we are still in UK as of now. Yesterday we had several tests completed that should have already been done, but we had to put a little "fire" under them to get it done. We didn't lose our religion but I thought several times we may have to use our one phone call from jail.......We found out from the tests that were done Elijah has pure esophageal atresia, no seizures, and a very long distance between his esophageal pouch and stomach. When his pouch is getting full it is spilling into his lungs and pushing onto his trachea, which leads to the "episodes" he has been having. As of this evening he has not had any episodes since they made the suction continuous and put him on the ventilator. We have spoken with his surgeon who would like to wait and let him grow before they repair his ea. However, he is going to send Eli's information to a leading surgeon on this issue in Minnesota for a consult at our request. We pray that this will give us some more information on how his esophageal atresia can be repaired sooner than later. Please keep us in your prayers as God lays the path for his treatment and if he needs to be taken to Minnesota then God will let us know the answer. Thanks for your continued prayers.
Ryan and Tammy
Bad Day for the Cut sledování filmů online 2017
5 years ago
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Thank God they figured that out Tammy. It is crucial that his upper pouch doesn't fill up with fluid and get into his lungs. This can, and often does, lead to pnuemonia. As we x-rayed Samuel for 7 months (every two weeks) to see if his esophagas had grown long enough to connect it, the radiaoligist at UK was astonished that he had never once had pnuemonia. The success was only because we were religious with suctioning him:) So don't allow some intern, or nurse with different ideas, to come along and turn the suction off. :) This happens sometimes in a teaching hospital, but now you are armed with some good information girl! :) I'm glad that you pused the point. You are Eli's best advocate, so be strong and keep standing up for him. As you will read on the EATEF.ORG site, there are various theories about how long to wait, but usually the ends don't seem to be able to grow enough on their own to connect (because Eli will be growing too, and it's hard for them to keep up with a growing boy:) But don't worry. There are many parents who can give you details about their childen's doctors. Some do the Foker procedure, and some don't. The good news is you have time to research and make an informed decision. As long as you keep Eli suctioned out (easy enough) and feed him via his tube, he'll be able to thrive and grow. Get some meat on that boy:) Before our son's EA, I had never even heard of feeding tubes, but after, it was revealed to me that a very large percentage of society is walking around with feeding tubes. It will be fine. Sometimes it takes awhile to get his tummy used to the formula via feeding tube, but be patient and go slowly. Often you have to work your way up to the desired amount (you'll get plenty of help with all that... so don't worry:) I'm not on my computer, but I just wanted to check the blog for an update, and remind you that you are in our prayers. Call any time. Hugs and kisses to Eli! Take care.
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