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Sunday, August 31, 2008

8/31 Update

Elijah is continuing to do well of the ventilator. He is breathing best on his stomach, but he is having a little issue with secretions. Because he hasn't been able to swallow, he doesn't really know how. He is having to learn as he goes. Also, no doubt, his throat is sore from the intubation. I (Ryan) was able to hold him up for about thirty minutes today and let him breath and cough. He had a couple of good coughs and was doing well. I even got a smile out of him!! That's enough to make Dad's day. (Of course, he likes me better anyway. :-)).

Tammy spoke with Dr. Hess this morning and the plan is to do an aortapexy later this week. They feel pretty confident, especially with him doing the best on his stomach, that the vessel is collapsing his already soft trachea at that spot. Basically, they will stich up the vessel to the chest wall, which will keep it from laying on the trachea. That should help his airway stay open and eventually grow strong. At this point, we are unsure of a day or time, but will post with more details later.

By the way, he had an episode yesterday after intubation where he stopped breathing. They had to bag him, but he came right out of it. That is why he is mainly on his stomach and doing well. Continue to pray for him as he goes through this process. Pray he doesn't need to be re-intubated, at least until the surgery is needed (as he will be then) and pray that the surgery goes well and it helps his airway stay open. Thanks to all who are praying for us. We truly appreciate it!!

God Bless....
The Frazier's

1 comment:

Anonymous said...

Bless his heart..and yours! I can only imagine how scary it is when he stops breathing! I am sorry to hear he has severe tracheomalacia...but as I said, it is very common in our little guys. What a BLESSING it is to hear that they can do the aortaplexy....we did not have the option for that when Noah was born. He had a tracheostomy instead. I am happy to hear he is extubated...GREAT news! I am praying all goes well for his surgery! May God continue to fill you with His perfect peace and comfort...Michelle

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