Bump in The Road

Elijah has been breathing a little harder today and has some more junk in his airway. He has not been able to get rid of it by coughing or swallowing it. Therefore, this afternoon around 1 p.m. he had such a big glob of junk he just couldn't handle it anymore. The nurse poked her head out to get the dr. and while she was getting him he began to turn blue around the mouth. I sent my grandmother out for help and I began screaming but the outcome was for me to push the blue code button. That is still another one of those firsts that i could have lived without. It really tore my grandmother apart. She has never seen him in this situation and believe me it is really hard. Dr. Hess says this is another bump in the road.....so we will wait. They are hoping that when he begins to work with speech and learns how to swallow better it will help. They say he has received the optimized care for all areas at this time. The aortopexy has removed the aorta/innominate off, yet we still have the tracheomalacia (soft trachea). This will only get better with time and growth. The esophagus seems to be healing fine. Everything else is just making sure we get it right and fix it. Please pray we can find out what is for sure going on with the secretions and manage them.

This is for God's plan for us right now and we know he is in control. I will have to admit I am having a hard day today. It keeps getting harder to see your child turn blue and have a gazillion dr.'s run to his rescue. However, thank God they are there to help him. They definately are on top of things here. With each passing day we know this is where God would have us to be. I think maybe a good cry wouldn't be too bad. I know that God will take bad situations and turn them into good but you know sometimes it is a little rocky through the bad.....Praise God we can rely on him. You know sometimes that is easier said than done. I think at times we can put a wall around ourselves as christians to somehow disguise our discouragement. I have down days where I feel like giving up and going to bed for a day or two.....maybe three. I also can feel a heaviness on my heart when things like today happen. And I struggle with being discouraged and feeling beat down. But, guess what the only difference in how we face trials and life in general as believers is that we have Jesus Christ to rely on. Praise HIM!!!! I can not imagine trying to face this day to day without knowing all I have to do is call upon my savior to give me strength. And believe me I have needed it and continue to need it daily.

Thanks for all your prayers. We continue to give God the glory even in this bump in the road. Because you know you what he knows exactly how we are going to get over it. We praise him for all he has done so far and will continue to do for our children adn us. Thanks.

We love you
The Frazier 5