October 3rd

After a rough couple of days, Elijah was taken off the high flow oxygen last night. He had a great night and looked better than he had in a few days. He is managing secretions well so far, taking his pacifier, and resting comfortably. He continues to baffle everyone, including his parents!! We are cautiously optimistic right now, and are just enjoying the current success. Neurology is going to get involved at a greater level for the arching and sensitivity. It also seems he is going to need another dilation, which is very common for EA kids. The speech therapist is supposed to come this afternoon, so we are anticipating his success. He took a little water from a cotton swab yesterday and seemed to enjoy it. Baby steps, but steps indeed!

The rest of us are doing well. Matthew loves his teacher, Mrs. Britain. He is still apprehensive each morning about going, but is okay once he gets there. He is going to be fine, we just have to convince him of that. Andrew is doing well too. He wishes he could be in school. Go figure! Anyway, the boys are excited about the Halloween party at the end of the month here a the 'house'. Apparently, it is a blast. They are looking forward to being here, and I don't imagine that will be an issue. A nurse yesterday mentioned the 'c' word, as in being here for Christmas. I don't know and honestly am giving up speculating. We will be home when we're home. And I won't believe until we cross the state line. But I might stop and kiss the good ole' Kentucky ground. This ain't Kentucky!! But it's home for now. And we are blessed, more than we can fathom.

Keep up the prayers, they are working and we do appreciate them.

God Bless...