DAY OF DR. APPT.'S

Well today went well. It was a long day and we are exhausted and tomm. will be another emotionally and physically grueling day. It is a great hospital the staff is great and everyone really put our mind at ease. They make it sound like such a "routine" surgery. But believe me I threw up a little when the neurosurgeon said they would remove Eli's forehead and then put it a back.....WHAT???? That is my baby adn you are going to take his skull out and pull down his skin. I am sure that is not what any mother wants to hear or father for that matter. Then off to the geneticist where we here he may have a syndrom called bbb/opitz g. That makes you want to be sick too. but you know what he is fearfully and wonderfully made if he has 20 syndromes and God DOESN"T make mistakes. Eli is EXACTLY how he was intended to be and we will love him just that way. We don't really even know what the syndrome will even change for him it just explains a lot of what is going on with him. He will be having surgery tomm. morning at 7:30 CT (8:30 there) so please keep him adn the team of dr. in your prayers. We will stay in teh ICU for one night (that is the plan) and then to the floor. Then discharged on Friday if all goes as planned. We will updated tomm. after the surgery. Love you all. Goodnight. 5 a.m. comes really early.