This will be a really quick update on Elijah. We are transferring him to University of Cinn. Children's Hospital this afternoon around 4-5 pm. He is having continued difficulty breathing and having his "episodes", which have been ruled out as seizures as of this morning. He is now having more difficulty keeping his oxygen and heart rate levels up. They are doing some tests this morning and we will hopefully find out more info. tonight and tomm. Please continue to pray for him as we look for some answers and treatment. Also, please pray Ryan and I are making the best decisions for his care at this point. We want to follow God's will in all we do and pray we can have a clear direction on his care. Thanks for your prayers.
In him,
Ryan and Tammy
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5 years ago
3 comments:
Our family will be praying for you and Elijah. He is a beautiful child.
David & Carmyn Kelly
I continue to pray that you each will have the physical and mental strength you need to get through this tough time. I also pray for the doctors and nurses that they're providing the best care possible for Elijah. And of course I'm praying for little Elijah too.
Hello Ryan and Tammy,A good friend shared your story and blog address with me today. I read every word on the blog, and can relate to what life is like for you and your family. Our son was also born with Esophageal Atresia, and we also live in Richmond. Please don't hesitate to call if we can do anything for your family. I mean that. The most helpful advice I can give is please go to www.eatef.org. When there, click on "discussion forum". Read the paragraph disclaimer, and click on "I understand". You won't believe all the information that will then be at your fingertips. This is the best resource for EA parents. Words cannot describe it. I'd immediately go to Q&A and post a brief history of Elijah's issues. There are many parents out there who have gone through, or are going through this (just not that many in Kentucky:) Also, go to "surgeries" and "stories" and see if anything sounds familiar. If so, you can e-mail that parent directly and ask questions. Usually, they'll send you their phone number and are very eager to help. Even if you don't interact with anyone, there's a wealth of information to read, from which I learned and gained strength as we moved through the various stages of our son's surgeries and recoveries. Don't worry about the EA for now. Stay focused on all the other issues for now and maybe just read up on EA stuff in the meantime. There are varying theories/approaches to making the connection. Most EA children are born with other issues to deal with as well. So you'll also read about these on this site. Post questions, and you'll get an alert (via e-mail)as people reply to your posts, but the site is a most effective tool if you also ask questions directly to folks whose story is similar to yours. EA, and accompanying issues, is so rare, that you won't find many experts in most hospitals. But parents of EA children live with it for years, and we end up knowing A LOT (whether we want to or not:)It's good to pool our resources too:) We were lucky when we were in the hospital in that we had access to Internet. (... a computer in the hall in Minnesota - where our son had his esophageal repair). It was my connection to the outside world:) and a way to stay occupied for the long time that I was there. Especially with long distances... it helps keep in touch with family and friends, but just as important... it's helpful for researching. My e-mail address is julie.bucknam@eku.edu. Please feel free to contact me any time, and know that well over a thousand people will be added to the army that is already praying for your family, and especially for your sweet little Elijah. (P.S. In my opinion, the leading EA program in the world was at Fairview Children's in Minnesota. There was always at least 5 EA children there at one time - all the time. The world renowned Dr. Foker was there, but he recently retired. If you are interested in e-mailing him any questions though, or calling him, let me know and I'll send you his contact information... I believe in leaving no stone unturned:)as you can tell:) Rivers of blessings!
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