Happy Saturday to all. Elijah is doing some better today. He is still having some junk issues in his airway, however, he is giving us much better coughs. The chest tube was removed yesterday, which helped relieve some of the pain. He is doing much better today than yesterday in all aspects. The upcoming plans are to do a dilation of his esophagus (if needed after bronchoscopy) on Monday. Then we will begin speech again to help with swallowing and maybe getting some food sometime soon. Elijah has shown us some hypersensitivity when touched. He gets really mad fast after being over stimulated. Therefore, if the current relaxation medication doesn't work we are going to try some type of neurological med. to help with sensitivity. We are hoping after this post op recovery we can get moving closer to home. Ryan counted and we have officially been here 75 days. If we stay until the end of Oct. it will be 102 days. You see we have that homesick feeling and the weekends are the worst. This is usually when we see our friends the most and it makes it kinda' rough up here.
We are so thankfully to be here as a family of 5 again. I think that was a good decision on our part after a lot of prayers. Matthew and Andrew seem much better satisfied being together, even though we still have some fights.....that's what brothers are for right!!!!!!!!
We will be adding some pictures today so check them out if you get a chance. He is growing and doing more "baby" things. talk to you soon.
The frazier 5
Bad Day for the Cut sledování filmů online 2017
5 years ago
2 comments:
Hello Fraziers!
I just finished reading up on Eli's progress. What a rollercoaster!! These EA babies like to keep us on our toes don't they!! We will be at the U on Monday for a check up with Dr. Hess. Hopefully we can swing by and say hello. If you ever need anythng or just need to talk feel free to call us ANYTIME. We know what a long waiting game it can be and how lonely it gets. You guys are such a wonderful family!! Tell the boys "hi" from Wes and Deven. Take care!
Love,
Shanna, Sean, Deven, Wes, and Ireland Meyer
Hello Ryan and Tammy,
With talking about touch hypersensitivity, did anyone talk about working with an Occupational Thearapist trained in Sensory Integration? Sensory Integration works at helping the senses work together equally.
We have found this therapy very helpful in working with Grace and with one of our older children. When we first heard about it we did not think much about sensory Integration. Over time we have found Sensory Integration to be very helpful.
We are continuing to hold you all up in our prayers.
Lord willing, 75 to 102 days will be a short time in the context of Elijah's life.
At the same time, it is a long time to be away.... so glad you can be together as a family.
We are praying for health for Elijah!
the Longs in whitesburg
Post a Comment